Monday, March 23, 2009

Hair loss sucks, Jordi and Jed, Quantronics and Happy Birthday Christopher!


10th March 2009


Hi all,

Today's fasting and prayer went well, Jed had a good day and dinner tasted LOVELY!

Jed's radiation session went very quick, he was a super star. Michelle (Jordan's mommy) arranged today's bribe. It was full of BEN10 goodies and a very awesome BEN10 speaker thing and the ULTIMATE WATCH. Jed now owns every single BEN10 toy out there! Michelle and Jordan have been on my heart today as I prayed for my own son I thought and prayed for Jordi and Michelle. Jed and I visited with them on Monday and it was a wonderful day. Jordan has the most beautiful loving family and Michelle's strength just amazes me all the time! The boys had a swim together and I promise you I noticed Jordan using his little legs at more in the pool. It seemed allot better than the last time I saw him. My heart was full of pride and hope! Please pray for fear in Jordan, I see a very frightened precious little boy! Ask God to give him reassurance that he is okay and that soon this ordeal with be over and he will be kicking a ball with his friend Jed!

Today is Christopher's (Janet and Andre's son) "actual" Birthday! Jed can't attend his party on Saturday; so today we had a very special day with Jed and Christopher having BEN10 cupcakes, presents (for Christopher) and a special party just for Jed to celebrate with his friend. Very special! Christopher ran and washed his hands before hugging Jed hello. He said "Hi Jed, I had to wash my germs off so they don't jump on you!"

On the way home from Christopher's house today, I removed Jed's buf (his little red scraf that he wears to protect his head from the sun) and I noticed with shock that his hair had fullen out on the cerebellar (back of the head). I was so taken back, it happened some time during the day. Jed's hair is very short but we cut it like that as you can't wash it during the radiation. The two spots are bold bold bold. It makes it so much more real.....

Some better news, is my dad phoned me today, he hasn't spoken to me since he heard that Jed has cancer.

Conversation,

Dad: "hey my little bird (me)"
Me: "Hey dad"
Dad: "your mom and anne made me phone, so hello, I love you"
Me: "I know dad"
Dad: "Bird, I love Jed too"
Me: "I know dad, I know"
Dad: "So the doctors say it isn't good, so now I pray Bird, bye"
Me: "Thank you, I love you daddy, bye"

Honestly I've left nothing out!

Now, for anyone who knows my dad, the fact that he called is amazing, but the fact that he said he would pray is even more odd. You see, my dad doesn't believe, he has like zero faith, and I think he may just pray! I found the call to be very special. I adore my dad, and I have no doubt that the only reason he can't speak to me is because he loves me, and hates to see me hurting.

I have attached the DNA report for everyone to see, and please comment on it (if you have heard of this machine). Thanks to DHL for the overnight super fast delivery. The Quantronics machine is what the other child with a similar tumor to Jed used and his parents believe it put him into remission. It is like the Rife machine, only you don't need to hold it. I welcome any input. I did phone the man Juan and I discussed the treatment plan and he also advised that we could hire the machine afterwards (after chemo) for R1500 a month (including service fees) - now we pray that this is an answer to prayers!

Today, I attached a picture of Jed and I just hanging out!

Love, hugs and thanks for your prayers
Bon and Jed x x x x

1 comment:

  1. Hello,
    Have you heard of Stanislaw Brzinski? He is a specialist in Texas who works with children who have brain tumors (I think mainly glioblastoma) which is inoperable and has fantastic results in shrinking the tumors. If you would like more information my phone # is 570-245-1109. Hope this is helpful! Irene

    ReplyDelete