Sunday, June 28, 2009

Ben 10 day out


29th June 2009




Hello there,

It was wonderful to step out of Planet Cancer and enjoy a day of fun at the Ben10 exhibition at Gallagher Estates. I believe my sister and the gwans nagged the world until this dream came true. When Nicole phoned she said that Jed could invite his best friend - we decided that Jordi would be the best one to take with us... as every other kiddie we know could attend during the normal exhibition times.

We arrived at 7am and both Jed and I were super excited. Jed was dressed warm in his Ben10 jacket from the Cape Town team. Nicole from Gallagher met us at the gate and we entered through the loading area. Everyone was expecting the boys and we were treated like royalty. The area was cleared to control infection for the boys and they had the opportunity to enjoy every part of the Ben10 experience. There were jumping castles, trampolines, swings that went up and down inside the jumping castle, Ben10 movies, photo booths, games, a magic show which was done especially for Jed and Jordi and so so so much more. Jed ran around so excited - I could hardly take pictures as he was all over the place. As we moved around, the area was cleared of people (crew) so that there was no risk of germs for the boys. Nicole never left our side and made sure that we were kept happy at all times. Jed really took to her and was playing with her none stop. She is so beautiful inside and out so my son has great taste! We also got to meet "Four Arms" and "Accelerate aka Faster Guy", Jed clung to me like a monkey as the characters came close and kept his distance. He was honestly more interested in playing with Nicole. We left just before 9am and it was one of my best days ever. I had tears of joy watching Jed having such an amazing time. The management team also arranged a Ben10 gift pack with bedding, curtains, clothes, towel and a Ben10 puzzle - all with the super logo on it... Jed and Jordi must have felt so special. Jed is still talking about how much fun he had. I just can't say thank you enough for those who made this possible for my boy.

And in other news....

Ray's platelet donation went perfect on Thursday. Jed did not require platelets as overall his counts looked good. Platelets 122, Red at 10 and his white cells - immune fighters are still at the lowest levels but we are mostly indoors so I am not too concerned.

Michelle and I decided to take Jed and Jordi out to a toy shop after the Ben10 show to get him a Ninja Turtle truck, Jordi has one and Jed really loves it. Michelle suggested we go to a massive warehouse type toy shop to avoid people and we go mid day while most people are at work. Not only did the boys get to meet Ben10 but also choose a toy each. I did use the fund card for Jed's toys. He decided on a Turtle Truck, a Turtle mask, and some fighting gear (for war with dad). The toys came to about R500 and I haven't bought him much in a while so I hope no one minds that I spent some of the fund on toys. It was wonderful seeing Jed deciding on which toy to get.

A special thanks to my sister Shelly, Anthony and Norms for the support, love and gifts. I love you guys. Norms the Ben10 poster is awesome!

It was big chemo on Saturday so today we have had to deal with Jed's runny tummy, vomiting and generally not feeling great. He also has a rash on his chest that is irritating him slightly. We just pray that the chemo effects settle soon. I am speaking to a couple of other parents of children with PMA - the support has been amazing, the hardest part is when you realise the other children are not doing well; each day remains a blessing and a miracle. Please keep praying!

Overall, this has been a blessed and wonderful week, even the blood counts played along.

Attached is Jed and Jordi watching the magic show, Nicole is sitting behind them!

With love
Mom10, Dad10 and Jed10

2 comments:

  1. Way to Go, Nicole. I am so very glad Jed got to go to the Ben 10 at Gallagher. We went on Sunday but didn't buy tickets at Computicket so when we got there and found out that the tickets were sold out, we were very disappointed.

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  2. Ah no, sorry Gillian!!!

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