25th Mat 2010
Hi everyone,
......sorry for being so quiet but I have been enjoying the normal things that most of us take for granted. Jed and I have been going to play games (video arcade games), watching movies and living it up. It has been the most amazing time, Jed is eating so much better and his weight is at 22.8kgs this morning (and to think in September it was 16kgs)
We had a wonderful fund raiser to raise funds for Jed and Jordi. A special heartfelt thank you to everyone who came along and supported the boys. The evening was a huge success. We managed to raise just enough for the MRI scan which is a huge relief. Pat - thanks for all your hard work. I don't have any photos so if any of you took photos please send them to me. Jed's next MRI is on the 21st of June 2010 so please keep praying... Our pray is NED - NO EVIDENCE OF DISEASE - God can do this!
Jed is still going for Occupational therapy and he is showing some improvements with his fine motor skills. He is still having a hard time writing and doing some tasks as his hands still shake. The shake is caused by the damage from surgery and/or radiation. He calls it his wiggle - the wiggle has hampered his writing but not stopped him. He is now writing his name clearly and has mastered writing up to number 4. I am still home schooling him for 3 hours at day and he continues to amaze me with his intelligence (mmmm wonder where he gets it).
At the last blood test, we found out that Jed is Vit D deficient - so I am supplementing him, as I have read some interesting facts on Vit D working to help slow down or stop cancer cells. The last blood test showed his count was 24 and my aim is to get it up to 60 - 80. On Thursday we will do a full blood count to check sodium levels, liver function and Vit D. Thursday I will be taking him in for his port flush and to DELIVER GIFTS TO THE CHILDREN IN OUR ONCOLOGY WARD!!!!!!
My charity Rainbows and Smiles is now legal and with the help of my dear friend Dawn Van Vuuren from local magazine we are doing our first awareness day on Saturday. The sole purpose of this charity is to bring joy to children with cancer and create awareness. Membership to the organisation costs nothing and all members are open to all information and details regarding the organisation. Basically you join, you get e-mails and photo's of kids with cancer receiving a gift... simple..... As membership grows so does awareness for childhood cancer! Please see attached invite for Saturday! Rainbows and Smiles constitution is available for anyone to read, review and comment on. This is my way of "paying it forward......"
I thank you all for the continued love, prayers and support.
Love Bonni
Founder of Rainbows and Smiles
BUT MOST IMPORTANTLY PROUDLY JED'S MOMMY
......sorry for being so quiet but I have been enjoying the normal things that most of us take for granted. Jed and I have been going to play games (video arcade games), watching movies and living it up. It has been the most amazing time, Jed is eating so much better and his weight is at 22.8kgs this morning (and to think in September it was 16kgs)
We had a wonderful fund raiser to raise funds for Jed and Jordi. A special heartfelt thank you to everyone who came along and supported the boys. The evening was a huge success. We managed to raise just enough for the MRI scan which is a huge relief. Pat - thanks for all your hard work. I don't have any photos so if any of you took photos please send them to me. Jed's next MRI is on the 21st of June 2010 so please keep praying... Our pray is NED - NO EVIDENCE OF DISEASE - God can do this!
Jed is still going for Occupational therapy and he is showing some improvements with his fine motor skills. He is still having a hard time writing and doing some tasks as his hands still shake. The shake is caused by the damage from surgery and/or radiation. He calls it his wiggle - the wiggle has hampered his writing but not stopped him. He is now writing his name clearly and has mastered writing up to number 4. I am still home schooling him for 3 hours at day and he continues to amaze me with his intelligence (mmmm wonder where he gets it).
At the last blood test, we found out that Jed is Vit D deficient - so I am supplementing him, as I have read some interesting facts on Vit D working to help slow down or stop cancer cells. The last blood test showed his count was 24 and my aim is to get it up to 60 - 80. On Thursday we will do a full blood count to check sodium levels, liver function and Vit D. Thursday I will be taking him in for his port flush and to DELIVER GIFTS TO THE CHILDREN IN OUR ONCOLOGY WARD!!!!!!
My charity Rainbows and Smiles is now legal and with the help of my dear friend Dawn Van Vuuren from local magazine we are doing our first awareness day on Saturday. The sole purpose of this charity is to bring joy to children with cancer and create awareness. Membership to the organisation costs nothing and all members are open to all information and details regarding the organisation. Basically you join, you get e-mails and photo's of kids with cancer receiving a gift... simple..... As membership grows so does awareness for childhood cancer! Please see attached invite for Saturday! Rainbows and Smiles constitution is available for anyone to read, review and comment on. This is my way of "paying it forward......"
I thank you all for the continued love, prayers and support.
Love Bonni
Founder of Rainbows and Smiles
BUT MOST IMPORTANTLY PROUDLY JED'S MOMMY
and what a lucky little boy jed is to have such an amazing mommy!!! Bon, u are an inspiration to us all, you are the mother we all strive to be, under the most trying circumstances, you always have a postive outlook and think about everyone else!!! You are one in a million, and i hope one day i get it right to finally meet you!!! :-)
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