20th April 2009Hello there,
Jed's blood counts are up! Thank you to everyone for your prayers. His platelets are 223 (thousand), white cells are at 3 and red cells are back to a normal 12. The next step now is the port. Jed's blood count indicates that treatment can continue. His port operation will take place next week. Prof Poole has to confirm when the surgeon is available. We have requested Professor Peter Beale to do the port at Linksfield. He is away this week so we will only have confirmation on Monday. Professor Poole is hoping that the port will be done on Monday already (the sooner the better).
We went over the chemo risks (the plan is yet to be confirmed). It is all very overwhelming and we pray that the risks are something Jed will never have to face. He MAY get twitches in his legs and arms; his balance and walking MAY be affected; he MAY lose his hair (the radiation patch is still bald); his eye lids MAY go droopy (not sure why this is) and then the normal chemo risks of nausea and exhaustion. If he is allergic to the chemo then the risks are far more serious (but for now we hand it over to God and we don't even worry about it) We will need to keep his area (home) very hygienic during the chemo and they recommend we limit him from visitors (however we will allow people to see him if his counts are good)
The chemo will be done at the Gen. I spoke to Prof Poole about going private at Donald Gordan, she basically said it was our choice but she is based at the Gen. I will therefore remain at the Gen for the duration of his chemo. However, should Jed need to be admitted we will go over to Donald Gordan.
The question everyone is wondering now is.... when is the next MRI.... it is going to be in about 4 weeks time. The MRI will show if the radiation has worked, no matter what the MRI shows chemo goes ahead. Our prayers are that by a miracle of God the MRI shows that the tumour is gone, 100% clear and that Jed is healed. I am very nervous for the MRI and I am not pushing Prof Poole for this step.... she will discuss it with us when she is ready. Please pray about this. We have been told that this tumour can be shrunk by radiation and chemo but not completely... we know that God can do anything and with the power of positive thought and prayers we stand united in the belief that the tumour is gone!
For now, we are blessed with a full week off and no treatment... we pray that the port operation goes well and that we can start the next round of treatment.
Attached is a picture of Jed hard at work!!
Please continue to keep us in your thoughts and prayers.
With lots of love and hugs
Bonni x x x
Jed's blood counts are up! Thank you to everyone for your prayers. His platelets are 223 (thousand), white cells are at 3 and red cells are back to a normal 12. The next step now is the port. Jed's blood count indicates that treatment can continue. His port operation will take place next week. Prof Poole has to confirm when the surgeon is available. We have requested Professor Peter Beale to do the port at Linksfield. He is away this week so we will only have confirmation on Monday. Professor Poole is hoping that the port will be done on Monday already (the sooner the better).
We went over the chemo risks (the plan is yet to be confirmed). It is all very overwhelming and we pray that the risks are something Jed will never have to face. He MAY get twitches in his legs and arms; his balance and walking MAY be affected; he MAY lose his hair (the radiation patch is still bald); his eye lids MAY go droopy (not sure why this is) and then the normal chemo risks of nausea and exhaustion. If he is allergic to the chemo then the risks are far more serious (but for now we hand it over to God and we don't even worry about it) We will need to keep his area (home) very hygienic during the chemo and they recommend we limit him from visitors (however we will allow people to see him if his counts are good)
The chemo will be done at the Gen. I spoke to Prof Poole about going private at Donald Gordan, she basically said it was our choice but she is based at the Gen. I will therefore remain at the Gen for the duration of his chemo. However, should Jed need to be admitted we will go over to Donald Gordan.
The question everyone is wondering now is.... when is the next MRI.... it is going to be in about 4 weeks time. The MRI will show if the radiation has worked, no matter what the MRI shows chemo goes ahead. Our prayers are that by a miracle of God the MRI shows that the tumour is gone, 100% clear and that Jed is healed. I am very nervous for the MRI and I am not pushing Prof Poole for this step.... she will discuss it with us when she is ready. Please pray about this. We have been told that this tumour can be shrunk by radiation and chemo but not completely... we know that God can do anything and with the power of positive thought and prayers we stand united in the belief that the tumour is gone!
For now, we are blessed with a full week off and no treatment... we pray that the port operation goes well and that we can start the next round of treatment.
Attached is a picture of Jed hard at work!!
Please continue to keep us in your thoughts and prayers.
With lots of love and hugs
Bonni x x x
Pastor Bokkie and the two gwannies are going to visit our boy and his mom and dad tomowwow. Love you all lots and lots. The soccer one
ReplyDeleteHi Bonni,
ReplyDeleteMy thoughts are prays are with you and your Family. I can't imagine what you guys are going through.
Take Care
Catherine Butcher